OpenCodelists

Welcome to OpenCodelists, created by OpenSAFELY for creating and sharing codelists.

Anybody can also use this tool to create and share codelists. To get started, take a look at the documentation or watch the videos.

If you would like to publish codelists on behalf of an organisation, please get in touch.

Below, you'll find all the codelists that have been used in OpenSAFELY research to date.

All codelists


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Burden of neurodegenerative diseases: Frontotemporal dementia SNOMED SNOMED CT
The SNOMED code lists were created by compiling codes from the Quality and Outcomes Framework lists (e.g. QOF Dementia Cluster) and the NHS Digital Primary Care Domain Refsets. (e.g. for Parkinson's etc).
Burden of neurodegenerative diseases: Huntington's disease ICD10 ICD-10
Prevalent cases of neurodegenerative disease with an established diagnosis.
Burden of neurodegenerative diseases: Huntington's disease SNOMED SNOMED CT
Prevalent cases of neurodegenerative disease with an established diagnosis.
Burden of neurodegenerative diseases: Lewy body dementia SNOMED SNOMED CT
The SNOMED code lists were created by compiling codes from the Quality and Outcomes Framework lists (e.g. QOF Dementia Cluster) and the NHS Digital Primary Care Domain Refsets. (e.g. for Parkinson's etc).
Burden of neurodegenerative diseases: Mixed or other specified dementia SNOMED SNOMED CT
The SNOMED code lists were created by compiling codes from the Quality and Outcomes Framework lists (e.g. QOF Dementia Cluster) and the NHS Digital Primary Care Domain Refsets. (e.g. for Parkinson's etc).
Burden of neurodegenerative diseases: Motor neuron disease ICD10 ICD-10
The ICD-10 code lists were created by defining the disease of interest by a clinician, then searching relevant codes in the ICD-10 code browser.
Prevalent cases of neurodegenerative disease with an established diagnosis.
Burden of neurodegenerative diseases: Motor neurone disease SNOMED SNOMED CT
Prevalent cases of neurodegenerative disease with an established diagnosis.
Burden of neurodegenerative diseases: Multi-system atrophy ICD10 ICD-10
Prevalent cases of neurodegenerative disease with an established diagnosis.
Burden of neurodegenerative diseases: Multiple system atrophy SNOMED SNOMED CT
Prevalent cases of neurodegenerative disease with an established diagnosis.
Burden of neurodegenerative diseases: Other specified dementia ICD10 ICD-10
Prevalent cases of neurodegenerative disease with an established diagnosis.
Burden of neurodegenerative diseases: Parkinson's disease ICD10 ICD-10
The ICD-10 code lists were created by defining the disease of interest by a clinician, then searching relevant codes in the ICD-10 code browser.
Prevalent cases of neurodegenerative disease with an established diagnosis.
NB. This codelist does not include parkinsonism + disorders (multi-system atrophy or progressive supranuclear palsy). These codelists have been developed separately and can be used in conjunction with this one.
Burden of neurodegenerative diseases: Parkinson's disease SNOMED SNOMED CT
The SNOMED code lists were created by compiling codes from the Quality and Outcomes Framework lists (e.g. QOF Dementia Cluster) and the NHS Digital Primary Care Domain Refsets. (e.g. for Parkinson's etc).

Prevalent cases of neurodegenerative disease with an established diagnosis.
Burden of neurodegenerative diseases: Progressive supranuclear palsy ICD10 ICD-10
The ICD-10 code lists were created by defining the disease of interest by clinician, then searching relevant codes in the ICD-10 code browser.
Prevalent cases of neurodegenerative disease with an established diagnosis.
Burden of neurodegenerative diseases: Progressive supranuclear palsy SNOMED SNOMED CT
Prevalent cases of neurodegenerative disease with an established diagnosis.
Burden of neurodegenerative diseases: Unspecified dementia ICD10 ICD-10
Prevalent cases of neurodegenerative disease with an established diagnosis.