Burden of neurodegenerative diseases: Lewy body dementia SNOMED

Coding system: SNOMED CT (UK Clinical Edition)
Coding system release: 41.0.0
Organisation: University of Bristol
Codelist ID: bristol/burden-of-neurodegenerative-diseases-lewy-body-dementia-snomed
Version ID: 3b0092de
Number of codes included: 12

Versions

Description

The SNOMED code lists were created by compiling codes from the Quality and Outcomes Framework lists (e.g. QOF Dementia Cluster) and the NHS Digital Primary Care Domain Refsets. (e.g. for Parkinson's etc).

Methodology

Context

The codelist is for use in a neurodegenerative disease burden study (Bristol/ Edinburgh/ Cambridge) to categorise dementias by subtypes.

Inclusion/exclusion criteria

Codes indicative of the diagnosis of Lewy body dementia.

Borderline cases

Sensitivity vs specificity

Codes specific for Lewy Body dementia were selected.

Additional information

Proposed by W Whiteley & S Sarepalli. Reviewed and modified by A Tamborska & W Shi.

References

Github

Signed off by

Arina Tamborska, (Sept. 2, 2026)

Codelists are developed by a broad community of users for individual study purposes, which may or may not meet the needs of other studies. They should not be thought of as universal definitions of a particular condition.

We don't offer any guarantees about what they do or don't identify. Users should carefully check that any codelist meets their needs, and seek clinical input where appropriate.

code	term
135811000119107	Lewy body dementia with behavioral disturbance
1363184005	Early onset dementia due to Lewy body disease
1363185006	Dementia due to Lewy body disease
192808003	Lewy body disease
198681000000106	[X]Lewy body dementia
214031000000108	[X]Lewy body dementia
230275004	Lewy body disease
230276003	Lewy body disease
230277007	Lewy body disease
312991009	Late onset dementia due to Lewy body disease
42769004	Diffuse Lewy body disease with spongiform cortical change
80098002	Diffuse Lewy body disease