Burden of neurodegenerative diseases: Parkinson's disease SNOMED

Metadata

Coding system
SNOMED CT (UK Clinical Edition)
Coding system release
41.0.0
Organisation
University of Bristol
Codelist ID
bristol/burden-of-neurodegenerative-diseases-parkinsons-disease-snomed
Version ID
062eec7e
Number of codes included
30

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About

Description

The SNOMED code lists were created by compiling codes from the Quality and Outcomes Framework lists (e.g. QOF Dementia Cluster) and the NHS Digital Primary Care Domain Refsets. (e.g. for Parkinson's etc).

Prevalent cases of neurodegenerative disease with an established diagnosis.

Methodology

Context

The codelist is for use in a neurodegenerative disease burden study (Bristol/ Edinburgh/ Cambridge); and captures prevalent cases with an established diagnosis. The codelists were developed for neurodegenerative diseases of interest: Dementia, Parkinson’s Disease, Parkinson’s-plus syndromes, Motor Neurone Disease. For the diseases of interest, we reviewed established codelists (e.g. QoF for SNOMED terms), and created any required codelists using diagnostic terms as search criteria. Shrimp browser and OpenCodeCounts were consulted for hierarchies and additional terms.

Inclusion/exclusion criteria

Clinical codes indicative of an established diagnosis were included. This includes atypical, genetic and juvenile PD. Clinical codes referring to Parkinson disease service or assessment, codes refering to parkinsonian symptoms, and other neurological disorders with features of parkinsonism were excluded if not classifed as PD.

Borderline cases

NA - see excluded cases

Sensitivity vs specificity

The primary aim was specificity. We included codes representing a clinical diagnosis of the condition of interest, rather than codes based solely on symptoms or clinical features.

Additional information

Proposed by W Whiteley & S Sarepalli. Reviewed and modified by A Tamborska.

References

Signed off by

  • Arina Tamborska, (Sept. 16, 2026)

Codelists are developed by a broad community of users for individual study purposes, which may or may not meet the needs of other studies. They should not be thought of as universal definitions of a particular condition.

We don't offer any guarantees about what they do or don't identify. Users should carefully check that any codelist meets their needs, and seek clinical input where appropriate.

code term
101421000119107 Dementia due to Parkinson's disease
103871000119109 Restrictive lung disease due to Parkinson disease
1156822001 Autosomal recessive familial Parkinson disease
1230308005 Off-periods in Parkinson disease not responding to oral treatment
1259080009 Disorder of autonomic nervous system due to Parkinson disease
154999006 Parkinson's disease
155000006 Parkinson's disease
155002003 Parkinson's disease NOS
15755701000119105 Fluency disorder due to Parkinson disease
192177005 [X]Dementia in Parkinson's disease
192825001 Parkinson's disease
192831003 Parkinson's disease NOS
230291001 Juvenile Parkinson's disease
341551000000108 Cerebral degeneration in Parkinson's disease
368771000000107 Cerebral degeneration in Parkinson's disease
425390006 Dementia associated with Parkinson's Disease
438513002 Cerebral degeneration due to Parkinson's disease
479161000000109 [X]Dementia in Parkinson's disease
49049000 Parkinson's disease
515841000000104 History of Parkinson's disease
604451000000109 Parkinson's disease NOS
715345007 Young onset Parkinson disease
716107009 Early onset parkinsonism and intellectual disability syndrome
716662004 Autosomal dominant late onset Parkinson disease
718685006 Orthostatic hypotension co-occurrent and due to Parkinson's disease
719717006 Psychosis co-occurrent and due to Parkinson's disease
723992000 Kufor Rakeb syndrome
724761004 Sporadic Parkinson disease
725146001 Atypical juvenile parkinsonism
756881000000108 History of Parkinson's disease

This page shows the search terms that were used to build the codelist. Concepts that match the search terms, but which were excluded, are in faint grey.

code: 101421000119107

Included 1 out of 1 matching concepts.

Show matching concepts
  • Dementia due to Parkinson's disease (101421000119107)