Burden of neurodegenerative diseases: Progressive supranuclear palsy SNOMED
Metadata
- Coding system
- SNOMED CT (UK Clinical Edition)
- Coding system release
- 42.4.0
- Organisation
- University of Bristol
- Codelist ID
- bristol/burden-of-neurodegenerative-diseases-progressive-supranuclear-palsy-snomed
- Version ID
- 33cc5850
- Number of codes included
- 6
About
Description
Prevalent cases of neurodegenerative disease with an established diagnosis.
Methodology
Context
The codelist is for use in a neurodegenerative disease burden study (Bristol/ Edinburgh/ Cambridge); and captures prevalent cases with an established diagnosis. The codelists were developed for neurodegenerative diseases of interest: Dementia, Parkinson’s Disease, Parkinson’s-plus syndromes, Motor Neurone Disease. For the diseases of interest, we reviewed established codelists (e.g. QoF for SNOMED terms), and created any required codelists using diagnostic terms as search criteria. Shrimp browser and OpenCodeCounts were consulted for hierarchies and additional terms.
Inclusion/exclusion criteria
Clinical codes indicative of an established diagnosis were included. Codes for supranuclear ophthalmoplegia were excluded as not synonymous with a progressive disorder.
Borderline cases
NA
Sensitivity vs specificity
The primary aim was specificity. We included codes representing a clinical diagnosis of the condition of interest, rather than codes based solely on symptoms or clinical features.
Additional information
Proposed by W Whiteley & S Sarepalli. Reviewed and modified by A Tamborska.
References
Signed off by
- Arina Tamborska, (Sept. 16, 2026)
Codelists are developed by a broad community of users for individual study purposes, which may or may not meet the needs of other studies. They should not be thought of as universal definitions of a particular condition.
We don't offer any guarantees about what they do or don't identify. Users should carefully check that any codelist meets their needs, and seek clinical input where appropriate.
| code | term |
|---|---|
| 1156761002 | Progressive supranuclear palsy progressive non fluent aphasia |
| 1156763004 | Progressive supranuclear palsy corticobasal syndrome |
| 1156764005 | Progressive supranuclear palsy parkinsonism syndrome |
| 1156790008 | Atypical progressive supranuclear palsy syndrome |
| 192976002 | Progressive supranuclear palsy |
| 28978003 | Progressive supranuclear ophthalmoplegia |
This page shows the search terms that were used to build the codelist. Concepts that match the search terms, but which were excluded, are in faint grey.
code: 28978003
Included 1 out of 1 matching concepts.
Show matching concepts
-
Progressive supranuclear ophthalmoplegia (
28978003)