Burden of neurodegenerative diseases: Unspecified dementia SNOMED
Metadata
- Coding system
- SNOMED CT (UK Clinical Edition)
- Coding system release
- 42.4.0
- Organisation
- University of Bristol
- Codelist ID
- bristol/burden-of-neurodegenerative-diseases-unspecified-dementia-snomed
- Version ID
- 57b0345a
- Number of codes included
- 57
About
Description
The SNOMED code lists were created by compiling codes from the Quality and Outcomes Framework lists (e.g. QOF Dementia Cluster) and the NHS Digital Primary Care Domain Refsets. (e.g. for Parkinson's etc).
Methodology
Context
The codelist is for use in a neurodegenerative disease burden study (Bristol/ Edinburgh/ Cambridge) to categorise dementias by subtypes.
Inclusion/exclusion criteria
Codes indicative of dementia but without a specific subtype.
Borderline cases
NB. This codelist contains "in remission" codes, therefore, it is not suitable for identifying individuals with "active" dementia (e.g. those suitable for drug treatments). This decision was made because individuals coded as "in remission" should still be counted towards prevalence (as remission does not indicate resolution). Similarly, a decision was made to include "history of" codes as the codelist is primarily used for prevalence rather than incidence. Dementias are unlikely to resolve completely.
Codes Dementia due to disorder of central nervous system 724776007 (20 uses) & Dementia associated with another disease 191519005 (20k uses) are headings for dementia codes due to other specific disorders. However, by themselves, they do not indicate a specific pathology and would be unlikely to be coded if a specific defined aetiology was present. For this reason, they were included in the unspecified codelist. "Associated with another disease" may also be used in practice to reflect a co-morbidity rather than dementia cause.
Sensitivity vs specificity
Codelist is designed to be specific for dementia diagnosis (as opposed to "memory issues" or "cognitive impairment").
Additional information
Proposed by W Whiteley & S Sarepalli. Reviewed and modified by A Tamborska & W Shi.
References
Signed off by
- Arina Tamborska, (Sept. 2, 2026)
Codelists are developed by a broad community of users for individual study purposes, which may or may not meet the needs of other studies. They should not be thought of as universal definitions of a particular condition.
We don't offer any guarantees about what they do or don't identify. Users should carefully check that any codelist meets their needs, and seek clinical input where appropriate.
| code | term |
|---|---|
| 1089501000000102 | Presenile dementia with psychosis |
| 1089521000000106 | Predominantly cortical dementia |
| 1089581000000107 | Predominantly cortical dementia |
| 12348006 | Presenile dementia |
| 138736007 | H/O: dementia |
| 154845000 | Dementia (& [presenile] or [senile]) |
| 154846004 | Uncomplicated senile dementia |
| 154847008 | Presenile dementia |
| 154848003 | Senile dementia with depressive or paranoid features |
| 154849006 | Senile dementia with delirium |
| 154851005 | Other senile/presenile dementia |
| 15662003 | Senile dementia |
| 1591000119103 | Dementia with behavioral disturbance |
| 161465002 | History of dementia |
| 191449005 | Uncomplicated senile dementia |
| 191450005 | Presenile dementia |
| 191451009 | Uncomplicated presenile dementia |
| 191452002 | Presenile dementia with delirium |
| 191454001 | Presenile dementia with paranoia |
| 191455000 | Presenile dementia with depression |
| 191456004 | Presenile dementia NOS |
| 191457008 | Senile dementia with depressive or paranoid features |
| 191458003 | Senile dementia with paranoia |
| 191459006 | Senile dementia with depression |
| 191460001 | Senile dementia with depressive or paranoid features NOS |
| 191461002 | Senile dementia with delirium |
| 191519005 | Dementia associated with another disease |
| 192180006 | [X] Dementia: [unspecif] or [presenile NOS (including presenile psychosis NOS)] or [primary degenerative NOS] or [senile NOS (including senile psychosis NOS)] or [senile depressed or paranoid type] |
| 192184002 | [X]Delirium superimposed on dementia |
| 22381000119105 | Primary degenerative dementia |
| 229672009 | Language disorder of dementia |
| 230289009 | Patchy dementia |
| 2421000119107 | Hallucinations co-occurrent and due to late onset dementia |
| 268675002 | [X]Unspecified dementia |
| 268744003 | Dementia (& [presenile] or [senile]) |
| 279982005 | Cerebral degeneration presenting primarily with dementia |
| 286932008 | Other senile/presenile dementia |
| 31081000119101 | Presenile dementia with delusions |
| 371024007 | Senile dementia with delusion |
| 371026009 | Senile dementia with psychosis |
| 402771000000101 | [X]Delirium superimposed on dementia |
| 413681000000103 | [X] Dementia: [unspecif] or [presenile NOS (including presenile psychosis NOS)] or [primary degenerative NOS] or [senile NOS (including senile psychosis NOS)] or [senile depressed or paranoid type] |
| 471341000000106 | [X]Unspecified dementia |
| 52448006 | Dementia |
| 544871000000102 | Other alcoholic dementia |
| 613591000000100 | Presenile dementia NOS |
| 613601000000106 | Senile dementia with depressive or paranoid features NOS |
| 698949001 | Dementia in remission |
| 723390000 | Rapidly progressive dementia |
| 724776007 | Dementia due to disorder of central nervous system |
| 724992007 | Epilepsy co-occurrent and due to dementia |
| 725898002 | Delirium co-occurrent with dementia |
| 762707000 | Subcortical dementia |
| 788861009 | Aggression due to dementia |
| 788862002 | Agitation due to dementia |
| 789170003 | Disinhibited behavior due to dementia |
| 88339003 | Dementia arising in the senium AND/OR presenium |
This page shows the search terms that were used to build the codelist. Concepts that match the search terms, but which were excluded, are in faint grey.
713488003
Included 0 out of 0 matching concepts.
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Language disorder of dementia
Included 1 out of 1 matching concepts.
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-
Language disorder of dementia (
229672009)
mixed dementia
Included 0 out of 1 matching concepts.
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-
Mixed dementia (
79341000119107)
code: 1089521000000106
Included 1 out of 1 matching concepts.
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-
Predominantly cortical dementia (
1089521000000106)
code: 1259476008
Included 0 out of 11 matching concepts.
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-
Altered behavior in dementia due to Huntington chorea (
82361000119107) -
Dementia due to Gerstmann Straussler Scheinker syndrome (
1259469003) -
Dementia due to Huntington chorea (
442344002) -
Dementia due to Rett syndrome (
130121000119104) -
Dementia due to Wilson disease (
1259511006) -
Dementia due to atypical pantothenate kinase associated neurodegeneration (
1259679007) -
Dementia due to classical pantothenate kinase associated neurodegeneration (
1259990004) -
Dementia due to familial Creutzfeldt-Jakob disease (
1259478009) -
Dementia due to fatal familial insomnia (
1259480003) -
Dementia due to fragile X syndrome (
1259473000) -
Dementia due to genetic disease (
1259476008)
code: 29672009
Included 0 out of 0 matching concepts.
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code: 713488003
Included 0 out of 2 matching concepts.
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Presenile dementia co-occurrent with human immunodeficiency virus infection (
713488003) -
Presenile dementia with acquired immunodeficiency syndrome (
421023003)
code: 762707000
Included 1 out of 4 matching concepts.
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Mixed cortical and subcortical vascular dementia (
230287006) -
Subcortical dementia (
762707000) -
Subcortical leukoencephalopathy (
90099008) -
Subcortical vascular dementia (
230286002)
code: 79341000119107
Included 0 out of 1 matching concepts.
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Mixed dementia (
79341000119107)
code: 88339003
Included 1 out of 1 matching concepts.
Show matching concepts
-
Dementia arising in the senium AND/OR presenium (
88339003)