severe and profound learning disability flags

Codelist metadata

Coding system
CTV3 (Read V3)
Coding system release
unknown
Organisation
OpenSAFELY
Codelist ID
opensafely/severe-and-profound-learning-disability-flags
Version ID
44ef542a
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Versions

  1. 44ef542a Published
    Created: 26 Jan 2021 at 17:39

About

Description

This is a list of generic codes which record the presence of a severe or profound learning disability, flagged as such in a patient's records separately to their underlying diagnosis.

Methodology

The purpose of this codelist was to define whether people have a code which specifically records that they have a "severe or profound" learning disability, as part of ascertaining eligibility for COVID vaccination under current guidance (The Green Book 2021)

Candidate codes were identified from: - searching the PRIMIS COVID-19 vaccine eligibility codelist - codes which categorise learning disability as severe or profound which are used in the learning disability register (based on the mapping to CTV3 in the OpenSAFELY learning disability codelist 6 July 2020) - searching for "severe AND learning" OR "severe AND mental" OR "profound AND learning" OR "profound AND mental"

This codelist does not attempt to categorise according to the underlying diagnosis, and so may miss people with severe learning disability who have not had this flagged in their records separately from the recorded diagnosis.

The codes are prepared from CTV3 and expected to have been used in general practices in records of people with a learning disability. Some codes may no longer be in routine use. We are aware that some of the individual codes contained in this code list are offensive and upsetting. Although these terms are outdated we have chosen to still include them in the code list due to the historic nature of the data that is being analysed. Excluding these terms would reduce the completeness of the data and may mean that some people with a learning disability are not included in the analyses.

References

Signed off by

  • Helen McDonald, (Jan. 26, 2021)

Codelists are developed by a broad community of users for individual study purposes, which may or may not meet the needs of other studies. They should not be thought of as universal definitions of a particular condition.

We don't offer any guarantees about what they do or don't identify. Users should carefully check that any codelist meets their needs, and seek clinical input where appropriate.

Clinical Findings

  • Status:
    Included
    Name:
    Profound learning disability
    Code:
    (XaREu)
  • Status:
    Included
    Name:
    Profound mental retardation
    Code:
    (Y9981)
  • Status:
    Included
    Name:
    Profound mental retardation with IQ less than 20
    Code:
    (E312.)
    • Status:
      Included
      Name:
      [X]Prfnd mental retardation without mention impairment behav
      Code:
      (Eu73z)
    • Status:
      Included
      Name:
      [X]Profound ment retard sig impairmnt behav req attent/treat
      Code:
      (Eu731)
    • Status:
      Included
      Name:
      [X]Profound ment retrd wth statement no or min impairm behav
      Code:
      (Eu730)
    • Status:
      Included
      Name:
      [X]Profound mental retardation, other impairments of behavr
      Code:
      (Eu73y)
  • Status:
    Included
    Name:
    Severe learning disability
    Code:
    (XaQZ4)
  • Status:
    Included
    Name:
    Severe learning disability
    Code:
    (YA841)
  • Status:
    Included
    Name:
    Severe mental retardation, IQ in range 20-34
    Code:
    (E311.)
    • Status:
      Included
      Name:
      [X]Sev mental retard sig impairment behav req attent/treatmt
      Code:
      (Eu721)
    • Status:
      Included
      Name:
      [X]Sev mental retard with statement no or min impairm behav
      Code:
      (Eu720)
    • Status:
      Included
      Name:
      [X]Sev mental retardation without mention impairment behav
      Code:
      (Eu72z)
    • Status:
      Included
      Name:
      [X]Severe mental retardation, other impairments of behaviour
      Code:
      (Eu72y)

Temporary And Local Additions

  • Status:
    Included
    Name:
    Severe mental retardation
    Code:
    (Y9103)

This page shows the search terms that were used to build the codelist. Concepts that match the search terms, but which were excluded, are in faint grey.

profound learning

Included 1 out of 1 matching concepts.

Show matching concepts
  • Profound learning disability (XaREu)

profound mental

Included 6 out of 6 matching concepts.

Show matching concepts
  • Profound mental retardation (Y9981)
  • Profound mental retardation with IQ less than 20 (E312.)
  • [X]Prfnd mental retardation without mention impairment behav (Eu73z)
  • [X]Profound ment retard sig impairmnt behav req attent/treat (Eu731)
  • [X]Profound ment retrd wth statement no or min impairm behav (Eu730)
  • [X]Profound mental retardation, other impairments of behavr (Eu73y)

severe learning

Included 2 out of 2 matching concepts.

Show matching concepts
  • Severe learning disability (YA841)
  • Severe learning disability (XaQZ4)

severe mental retard

Included 6 out of 6 matching concepts.

Show matching concepts
  • Severe mental retardation (Y9103)
  • Severe mental retardation, IQ in range 20-34 (E311.)
  • [X]Sev mental retard sig impairment behav req attent/treatmt (Eu721)
  • [X]Sev mental retard with statement no or min impairm behav (Eu720)
  • [X]Sev mental retardation without mention impairment behav (Eu72z)
  • [X]Severe mental retardation, other impairments of behaviour (Eu72y)